On Wednesday, I convened a group of neurological disease experts to highlight research and care for amyotrophic lateral sclerosis, or ALS. The briefing featured perspectives from a person living with ALS, health care providers serving people with the disease, and top research experts in both government and the private industry. ALS remains a 100% fatal disease, but recent advances in the field are bringing us closer to understanding causes and possible treatments.
Back in 2021, I led the passage of the Act for ALS. Signed into law by President Biden in December 2021, this legislation funds neurodegenerative disease research and early access to clinical trial therapies for patients with fast-progressing neurodegenerative and terminal diseases like ALS. Act for ALS will finally help people living with this cruel disease access promising treatments and create the research infrastructure needed to put a cure within reach.
To watch the full briefing, click HERE.