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Dear John,

I hope this message finds you well. Recently, you received an email from Caitlin Nagy, a member of our Parkinson Canada community. If you haven't had the chance to read her heartfelt message, I’ve included it below and gently encourage you to do so. Caitlin shares her inspiring journey with Young Onset Parkinson’s Disease (YOPD)—a narrative of resilience, hope, and the transformative power of support.

Her story is a testament to the strength found in shared experiences and the profound impact of our collective voices. 

Please take a moment to read Caitlin's email and consider contributing your story or the story of someone you know with Parkinson’s. Every voice has the potential to light the way for others on what’s still possible.

Thank you for being an essential part of our community.

Warmest regards,
Karen Lee, PhD
President and CEO
Parkinson Canada
 
 
Dear John,

Hello, my name is Caitlin Nagy, and I want to start my letter by thanking you for sharing World Parkinson’s Day with me today. You may remember hearing my story in the past. I reached out to you from a place of hope, despite the challenges of living with Young Onset Parkinson's. Today, I’m reaching out again, not just to share the strides I've made but to invite you to share a Parkinson’s journey too.

Sharing your story or a story of someone you know with Parkinson’s can show that hopeful journeys are still possible. Share a story today.

Living with Parkinson’s is a journey of constant adaptation, discovery, and, above all, resilience. Since my last letter to the Parkinson Canada community, my life has been a whirlwind of change, growth, and profound learning. I became a mother, a title I cherish more than any other. I embraced my role as a creative director and entrepreneur and even celebrated releasing a book. Through it all, my journey with Parkinson's has been a guiding thread, shaping my experiences and outlook.

My diagnosis at 31 felt like an insurmountable obstacle. The tremors, the uncertainty, and the fear seemed like barriers to the life I wanted to live. Yet, here I am, years later, finding strength I never knew I had, and learning that resilience is still possible.

But my journey is just one of many. Each of us has a story filled with challenges, triumphs, and moments of unexpected joy. That's why, on this World Parkinson's Day, I’m inviting you to share your story or the story of someone you care about who is navigating life with Parkinson’s.

Your experiences, whether you are a care provider or someone living with Parkinson’s, can offer comfort, education, and empowerment to individuals across Canada. By sharing, your real-life experiences become a powerful message: You are not alone.
Share your story
By clicking the button above, you’ll be taken to a page where you can fill out a simple online form with a summary of the story you want to share with our Parkinson’s community. It’s really easy! 

As I reflect on my journey, I'm reminded of the power of sharing. It's not just about opening up; it's about connecting on a deeper level and fostering a community of support and understanding.

All of our Parkinson’s stories have the power to inspire, to heal, and to bring us together. Let's show the world that even with Parkinson's, living a fulfilling, empowered life is still possible.

With gratitude and hope,

Caitlin Nagy
 
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