From Cystic Fibrosis Foundation <[email protected]>
Subject Together: a Community Update
Date April 4, 2024 8:20 PM
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Our latest research funding announcement


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# April 4, 2024



CF Foundation Invests Up to $8.5 Million in SpliSense


We are investing up to $8.5 million in additional funds in SpliSense ([link removed])
to conduct a Phase 2 clinical trial to test its drug for people with cystic fibrosis who have the splicing mutation 3849+10Kb C-to-T.

Read more about our investment » ([link removed])


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Register for ResearchCon

Regardless of your connection to cystic fibrosis, you can explore your curiosity and
engage with clinicians, researchers, and members of the CF community at ResearchCon April 30-May 1 ([link removed]). During this virtual event, you can ask questions and participate in roundtable discussions with CF researchers and clinicians as they discuss the work being done for people living without modulators, evolving infection research, the coordination of transplant and CF care, and more.

Register now » ([link removed])


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April is Donate Life Month

April is National Donate Life Month, a time to
register as an organ donor ([link removed])
and honor those who have saved lives through the gift of donation. Learn more about how you can help people who are waiting for a lifesaving transplant by registering as an organ, eye, and tissue donor.

Become an organ donor » ([link removed])


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Finding Hope: Life Without CFTR Modulators

Some people with cystic fibrosis cannot benefit from CFTR modulators because they're unable to tolerate the side effects or they have rare CF mutations. On the CF Community Blog,
Schyler Kline, an adult with cystic fibrosis who has two rare mutations, shares how he found hope and motivation through his participation in clinical trials ([link removed]).

Read Schyler ([link removed])


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