March 7, 2024

CF Foundation Invests More Than $6.6 Million in Additional Funding in Sionna Therapeutics 

We have invested more than $6.6 million in additional funding in Sionna Therapeutics to continue research into the development of potential new modulator therapies for people with cystic fibrosis with an F508del mutation. If successful, these therapies would provide other options to people with CF, especially those who cannot tolerate current modulator therapies because of side effects. 

More about our investment »

Bruce Marshall, Chief Medical Officer, to Retire From the CF Foundation 

Bruce Marshall, MD, will retire from his role at the CF Foundation as of July 1, 2024. Throughout his tenure, Dr. Marshall has overseen activities related to clinical care for the Foundation, including the care center network, quality improvement initiatives, clinical practice guidelines, and more.

Read the announcement »

Share Your Insights in Spanish With Community Voice

Community Voice now offers opportunities for Spanish-speaking members of the CF community to actively impact research, care, and programs. As a member of Community Voice, you can provide crucial input from the Spanish-speaking CF community on the topics, initiatives, and programs that matter most to you. Your insights are unique and valuable, and sharing them will improve the future for the entire CF community. Sign up today, or share this with a friend, to receive opportunities in English or in Spanish. 

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Raise Your Voice for Everyone with CF 

The needs of the cystic fibrosis community are unique, and there’s no one better to tell your story than you! Add your voice to ensure your elected officials prioritize the needs of people with CF and sign up for advocacy alerts today.

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Updated COVID-19 Guidance From the CDC

The CDC eliminated independent COVD-19 guidance, combining it with guidance for respiratory viruses. The update includes staying away from others until fever is gone and overall symptoms improve for at least 24 hours. Other precautions after returning to normal activities include:

• Wearing a well-fitting mask
• Enhancing hygiene practices
• Maintaining physical distance from others
• Testing for respiratory viruses

People at risk for severe illness, including those who are older than 65 or are immunosuppressed, should continue to take extra precautions, including getting vaccinated, wearing a mask, and taking appropriate antiviral medications.

Learn more »