From Cystic Fibrosis Foundation <[email protected]>
Subject Together: a Community Update
Date February 22, 2024 9:16 PM
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Take our research survey to share how the cost of life with CF affects you


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# February 22, 2024



Share Your Thoughts About the Cost of CF

How has the cost of living with cystic fibrosis affected your daily life and access to healthcare services? Adults with CF and caregivers of people with CF who are U.S. residents are invited to
participate in our research survey ([link removed])
and help the Foundation understand how to inform and support the CF community and care teams in addressing financial issues associated with CF. The survey will be available in Spanish in March.

Take the survey today » ([link removed])


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Move Your Idea Forward With an Impact Grant

Do you have an idea that could support people with cystic fibrosis or their families?
Applications are now open ([link removed])
for 2024 Impact Grants, which provide up to $10,000 per year, for up to two years, to individuals or programs that empower people with CF or their loved ones. Whether you're still developing your idea or running an established program, Impact Grants can help move your vision forward. Submit your application by April 5.

Apply now » ([link removed])


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Research Update Webinar Now on YouTube

In case you missed it, the
recording from our genetic therapies research webinar is now available on YouTube ([link removed]). Starting from the basics, learn about genetic therapies in CF, including how they differ from existing therapies and the benefits they can potentially provide to any person with CF, including people with nonsense and rare mutations.

Watch the recording » ([link removed])


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Recordings from BreatheCon Now Available


Recordings from BreatheCon ([link removed])
-- a unique virtual event for adults with cystic fibrosis -- are now on YouTube. Watch now to hear our opening keynote with Leah Schwanke and Raeshaun Jones, a session on parenting with CF, and a panel conversation about navigating working full-time with CF.

Get caught up » ([link removed])


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Get Involved ([link removed])•
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