The role of people with epilepsy and their support system in research has been evolving over the past couple decades as research and the corresponding care and treatment of epilepsy become more patient-centric. Involvement of people with lived experience early in the research process helps ensure that healthcare professionals treat epilepsy in a more holistic manner, not only by alleviating the impact of seizures and their debilitating side effects, but also by recognizing that everyone’s epilepsy journey is unique.
In this webinar, attendees will learn specifically about the importance and impact of people with lived experience in research of post-traumatic epilepsy (PTE). Attendees will hear about the Congressionally Directed Medical Research Programs (CDMRP), a Congressional appropriation that fills research gaps by funding high impact, high risk and high gain projects that other agencies may not fund, as well as the CDMRP’s commitment to community engagement. Additionally, people with lived experience who are deeply involved in the CURE Epilepsy mission will share their unique experiences in helping move PTE research forward.
