Hello,

Parkinson Canada is seeking input from people living with Parkinson's and care partners through a brief online survey that will contribute to important research underway to better understand the direct and indirect costs of Parkinson's disease in Canada.

Twenty minutes of your time can make a big impact!

Your experiences and insights are invaluable to this study. The more people who share data from their experience of living with or caring for someone living with Parkinson's, the more robust understanding we will have of the costs associated with Parkinson's in Canada, and the better we will be able to work in partnership to advocate for policies, services, and supports that will enable Canadians affected by Parkinson's to live well.

About the survey
Parkinson Canada has engaged Pricewaterhouse Coopers LLP (PwC) to conduct a survey to inform a socio-economic impact study. The distinct experiences of those affected by Parkinson's are critical to the success of this study. As such, we invite people living with Parkinson's and/or their care partners to participate in this important research and share their insights.

By participating, you can help to shape a more accurate picture of the challenges faced by people living with Parkinson's and care partners. Your responses will directly contribute to a deeper understanding of the disease's impact, influencing future priorities and initiatives.

Survey details and prizes
- The survey is available in both English and French
- Duration: The survey will take approximately 15-20 minutes to complete. It is open until January 23, 2024.
- Format: It is an online survey and can be accessed at this link ([link removed] ). If you require assistance to complete the survey questions, you can contact the Parkinson Canada Information and Referrals team at 1-888-664-1974, Monday to Friday, 9:00 a.m. 5:00 p.m. ET.
- Prizes: Once you have completed the survey, you will have the option to enter a draw to win one of five $100 Amazon gift cards
- Responding on someone's behalf: If you have Parkinson's and are unable to respond, with your consent, we invite a care partner to answer on your behalf

Confidentiality
This survey is administered by Leger. All collected data will be handled with strict confidentiality. Your responses will be combined into an aggregated dataset, ensuring your personal information remains anonymous. Leger will share only this aggregated data with PwC. PwC will use the information exclusively for this study, maintaining complete confidentiality. Access to your specific information is restricted to authorized PwC team members. No individual data will be disclosed in any reports or communications related to this study.

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Your insights are incredibly valuable, and we sincerely appreciate your willingness to share your experiences. Together, we can ensure people living with Parkinson's and their care partners can thrive.

Thank you for considering this request. If you have questions about the survey or have any technical issues, please contact Erin Christensen on the PwC team at [email protected].

Warm regards,

Karen Lee, PhD
President & CEO
Parkinson Canada

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Parkinson Canada
4211 Yonge Street, Suite 316
Toronto, ON M2P 2A9
(p) 416-227-9700 or 1-800-565-3000
(f) 416-227-9600
[email protected]