At this year’s North American Cystic Fibrosis Conference (NACFC), scientists and clinicians gathered to discuss and share ideas on the latest in cystic fibrosis research, care, and drug development. In case you missed it, catch up on the highlights now.
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Plenary 1: Genetic Therapies for All: Harnessing Cross-Disease Knowledge for Breakthroughs in Cystic Fibrosis |
What insights can we gain from the development of genetic therapies for other diseases, and how can those approaches be applied to cystic fibrosis? Ruby Steuart, an adult with cystic fibrosis, shares her top takeaways from plenary 1.
Read Ruby's blog >>
Watch plenary 1 on YouTube >>
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Plenary 2: “Micro-Management”: The Changing Face of Infections in CF |
Significant advancements in the treatment of CF over the past several decades have greatly improved the lives of people with CF. However, lung infections remain a persistent complication of the disease, and there continues to be a critical need to improve the diagnosis and treatment of lung infections in all people with CF. Following plenary 2, Annette Perry, an adult with CF, shares her highlights.
Read Annette's blog >>
Watch plenary 2 on YouTube >>
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Plenary 3: There is No Health Without Mental Health: Progress, Challenges, and Hope for the Future |
For all of us, mental health is critical for overall health. Chris Runge, an adult with CF, shares why plenary 3’s focus on the integration of mental health into CF care and research, in addition to the well-being of CF care teams, left him feeling heartened.
Read Chris’ blog >>
Watch plenary 3 on YouTube >>
Additional recordings from the conference — including symposia, many discipline groups, and lunch and learns — will be available on YouTube November 20. Subscribe to our channel now to get notified once they’re available.
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Have Thoughts on CF Care? |
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Living with CF can be very different for many people. Take the Adapting CF Care survey to share your thoughts on how the care at CF Foundation care centers can better meet your or your loved ones’ needs. The survey, which takes 6 to 11 minutes to complete, is available until December 20. Highlights from the survey results will be shared in early 2024.
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