Hi friend,

Rare Disease Awareness Day is today, 2.29.2020.
Can you chip in $29 or $229 so I can keep fighting for families like ours?

Chip in here: [link removed]

Let me tell you more about why this day is important to my family and I.

Did you know that 50% of patients diagnosed with a rare disease are children? My son was one of them. 


At just 2 weeks old Colton was diagnosed with a rare genetic bleeding disorder, then with Leukemia at 16 months old. It wasn’t easy. We were strained emotionally, physically, financially - in just about every way you can imagine. I started to realize how little resources there are for families like mine, even though rare diseases impact more people than cancer and AIDS combined.


That’s why I decided to get involved to fight and advocate for families like mine and so many others that lack the support they need and deserve. 


As your State Rep., I worked across the aisle to create the Rare Disease Advisory Council and when it came to a vote, it passed the House unanimously. Earlier this month, I was awarded the National Organization for Rare Disorders’ (NORD) 2020 Rare Impact Award for the work I’ve done to advocate for patients and families of those with a rare disease.


Families like ours need a voice in Columbus, and I need your help so I can continue being that voice.


This Rare Disease Awareness Day, I’m asking for your support for my re-election in November.


Will you make a contribution to my re-election campaign today?

Click here to donate: [link removed]

With your support, I will continue fighting for these important issues at the Statehouse. 


Thank you,

Randi

 


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| Paid for By Friends of Randi Clites |
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Friends of Randi Clites
5411 Fairhill Dr.
Ravenna OH 44266 United States

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