The CF Foundation is providing up to $3.9 million to TB Alliance to conduct lab testing of a compound that could eventually be used to treat infections caused by nontuberculous mycobacteria (NTM) in people with cystic fibrosis. NTM infections are difficult to treat, requiring antibiotics for a year or longer with no guarantee of success and with a risk of serious side effects.

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The 2022 CF Foundation Patient Registry Highlights Handout is now available. Important data highlighted includes, lung function, median predicted survival, and important milestones, such as how many people with CF have graduated from college or embarked on careers.

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Connect with others who are living with established cystic fibrosis lung disease or navigating life after lung transplant at NextBreath, a free, online event June 13-14 for people living with CF and their family members. Through small group discussions about learning to live with a new pair of lungs and the challenges that can come with established CF lung disease as well as one-to-one conversations, you can find community and connection with your peers. Each day of the conference will focus on different lung health journeys and experiences, please review the agenda to attend the day(s) and session(s) that are most valuable to you.

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Mental Health Awareness Month is observed in May to bring attention to the importance of mental health and break the stigma surrounding it. People with cystic fibrosis as well as people caring for someone with CF, such as parents, are more likely to experience clinical depression or anxiety. If you think you or your child may be depressed or experiencing persistent anxiety, don’t wait to ask for help: talk to your CF care team as soon as possible.

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