Wrestling with Social & Behavioral Genomics Consensus Report to be Launched at Special Event
A new report that makes recommendations for the responsible conduct of and communication about controversial research on the genetic contributions to human social and behavioral characteristics will be launched online on Monday, April 24, at 3 pm ET. Project leaders Erik Parens and Michelle N. Meyer and several members of the project’s diverse working group--including scholars who conduct social and behavioral genomics research and those who critique it—will discuss their recommendations and answer questions. The report was produced by The Hastings Center. Learn more and register.
Achieving the Promise of Precision Medicine Study Identifies Barriers to Access Among Medically Underserved Patients
The federal government’s All of Us precision medicine research program recruits participants from community health centers that provide primary care to medically underserved patients, with the promise that they will receive genetic research results, which may require follow-up testing and care. These patients face obstacles to getting recommended follow-up, according to a study by Hastings Center research scholar Carolyn P. Neuhaus, senior research scholars Nancy Berlinger and Karen Maschke, research associate Danielle Pacia, and medical anthropologist Johanna T. Crane of Albany Medical College. The authors propose policy and financing recommendations to reduce these barriers and ensure equitable access to precision medicine. Read the article.
Rural Communities Will Bear Brunt of Abortion Pill Ban Hastings Researcher Responds to Texas Judge's Decision
“Mifepristone has become a game changer for people in rural areas where access to abortion clinics is limited or nonexistent,” writes Hastings Center research associate Danielle Pacia in a letter in the New York Times. "However, if Judge Matthew J. Kacsmaryk’s decision is upheld, rural residents will struggle even more to get essential abortion care.” Read the letter.
Generating Hospital Revenue Ethically; ChatGPT Meets Bioethics From Hastings Bioethics Forum
In Search of Ethical Constraints on Hospital Revenue. Maximizing revenue by wringing as much money as possible from even indigent patients? Hospital actions like this “aren’t necessarily illegal but they certainly bring long-lurking issues within bioethics to the fore,” writes Lauren A. Taylor, an assistant professor at NYU and a Hastings Center senior advisor. Read her essay.
ChatGPT Just Makes Stuff Up. “While we are all figuring out the benefits and risks of using systems such as ChatGPT, it is safe to conclude that it should come with warnings for academic researchers: use with extreme caution and verify everything,” writes Jon F. Merz, of the University of Pennsylvania. Read his essay.
AI Meets Bioethics Literature. How Did It Do? “AI could be a powerful tool for making research found in medical and bioethics journals more accessible to a wider audience,” write Hastings Center fellow and advisory council member Arthur Caplan and Lee H. Igel, of NYU. Read their essay.
Upcoming Events
"In Vitro Derived Human Gametes as a Reproductive Technology: Scientific, Ethical, and Regulatory Implications. April 19-21.
"Wrestling with Social & Behavioral Genomics" Launch Event, April 24.
"Reimagining Healthcare Work, Repairing Healthcare Systems: Lessons from the Front Line, May 18.
"Exploring Origins and Impacts of Beliefs about Genetic Causation," May 18.
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