The latest updates for April 13, 2023


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CF Foundation Commits Up to $15.5M in Additional Funding for Potential Enzyme Therapy


We recently agreed to provide up to $15.5 million to Anagram Therapeutics ([link removed])
to conduct early-stage clinical trials of a novel enzyme replacement therapy. If the therapy is successful, people with cystic fibrosis would be able to decrease the number of enzyme pills they must take to digest food properly from a handful of pills to only one per meal. Anagram is planning to start a Phase 1 clinical trial of the enzyme therapy over the summer.

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Engage with Clinicians, Researchers, and Members of the CF Community at ResearchCon

If you have a personal or professional connection to cystic fibrosis,
you ([link removed])! During this two-day virtual event, you’ll learn and discuss the latest in CF-related science, research, clinical care, and lived experience alongside others living with and studying the disease. Plus, you can participate in an extended live Q&A with the experts following sessions on nutrition, CF genetics, CFTR genetic therapies, and lung transplant.

Save your seat » ([link removed])


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Celebrate National Volunteer Week at Gratitude Hour

By advocating, researching, connecting, and fundraising, our volunteers will keep working toward a cure until it’s done.
Join us April 19 at 7 p.m. ET for Gratitude Hour ([link removed]), an hour-long virtual event where we'll come together and hear from cystic fibrosis community members including Adam Brostowitz, an adult with CF; Eileen McConville, a mom of an adult with CF; Maria Znidarsic, an adult with CF; and Andrea Rodriguez, an adult with CF; share about what motivates their relentless fight against CF.

Register now » ([link removed])


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New on YouTube: Volunteer Leadership Conference 2023

Recordings from this year’s
Volunteer Leadership Conference are now available on YouTube ([link removed]). Watch today to hear from inspiring volunteers, including a mission moment with Steph Hansen, an adult with CF, and Stacey Armato, a parent to a child with CF, and get caught up on the latest in cystic fibrosis research and care.

Watch now » ([link removed])


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WE WILL NOT REST UNTIL WE FIND A CURE


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4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US



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