The latest updates for March 30, 2023


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New Lung Allocation System Introduced


A new 100-point lung allocation system introduced March 9, 2023 ([link removed]), intends to make the distribution of lungs more equitable and efficient by rebalancing the factors used to match lungs with donors. The new system places greater emphasis on urgency of the transplant need and those who are expected to live longer after transplant.

Learn more » ([link removed])




Make an Impact on Research, Care, and CF Programs


In 2022, Community Voice members participated in more than 60 opportunities ([link removed]). These projects helped inform and improve resources for the CF community on topics such as well-being and wellness, health equity, and more. Your unique experiences can help make a difference for the CF community, too. Anyone age 13 and older who has CF or is a family member of a person with CF is invited to contribute their voice to this empowering, virtual opportunity.

Join Community Voice » ([link removed])


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Recordings From BreatheCon Now Available

In case you missed it, recordings from BreatheCon — a unique virtual event for adults with cystic fibrosis —
are now available on YouTube ([link removed]). Watch now to hear our opening keynote with triathlete Lisa Bentley, a session on complementary wellness therapy, a mental health Q&A, and more. All sessions are available with English subtitles, and
select sessions are available in Spanish ([link removed]).

Watch on YouTube » ([link removed])




How Antibiotics Took My Hearing

When Samantha Marino, an adult with cystic fibrosis, needed antibiotics to treat nontuberculous mycobacteria,
she had to choose between the risk of hearing loss versus the reward of better lung health ([link removed]).

Read Samantha ([link removed])


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WE WILL NOT REST UNTIL WE FIND A CURE


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www.cff.org ([link removed])

4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US



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